I arrived at Guy's a little early (fear of getting lost!!), just in time to have my height, weight and blood pressure measured. I'm happy to say that I was quite chuffed at what the scales had to say!!
Next it was a urine sample. This bit was actually quite different, they gave me this shoe horn looking device, to which I had to connect a sample bottle. You pee into the shoe horn and it trickles into the sample bottle. Much better than trying to aim directly into the sample bottle!!
Then it was blood tests. Another 6 tubes of my precious AB negative blood, sent off to be tested for HIV, HEP B&C, glucose levels, anti-body levels, etc, etc ( i can't remember them all, it was a very long list).
Now it was time to see the transplant surgeon. We spoke briefly about the current status of our case. I hadn't realised that we aren't waiting for my brother to reach some "magic number" as far as his kidney function is concerned, we are looking at the rate of deterioration of his kidney function. To put it plainly, some patients take 5 years to go from 12% function to 10% function, while others may take 3 or 4 months. Again there are no hard and fast rules here, everyone is judged on a case by case basis, plus kidney transplantation is, in the grand scheme of things, a relatively new surgery.
Then we spoke about the surgery, they will be performing a Hand-assisted Laparoscopic Nephrectomy. Which basically means that the surgeon will insert a camera, through a small hole in my abdomen and two other instruments through two other holes. An incision would be made under my belly button, where the surgeon would put his hand to hold the kidney, while they disconnect it and the kidney will then be removed through this same hole. Urgh, makes me shudder just thinking about it!!
Then I got some brand new information, he told me that they had decided they would take my left kidney. I was asked to lie down on the examination table and he would show me where they would make their incisions. The picture below shows the incision sites for the removal of a right kidney, but you get the idea.
I will be laying on my side during the surgery, as that is the easiest way for them to gain access. I will also have a catheter fitted to drain the bladder. YUK! The surgery will take about 3 hours and the recovery time for this kind of surgery is about 6 weeks, unless you have a manual job then it can be up to 3 months! I will probably be in hospital for 5-7 days. They like to get you up and about on the second day after surgery as it helps the recovery process. No dates have been booked for surgery yet, as it obviously very much depends on my brothers condition.
My brother has his appointment with a Professor today, where I think they will discuss which transplant option is best for him. Paired scheme or direct transplant. I think they will also discuss his latest set of results and see what his current rate of deterioration is. So we just have to wait and see.
Below is a much more graphic image of the surgery, so if you are at all squeamish DO NOT LOOK AT IT.
Pretty gnarly huh? I'm gonna have a belly full of scars, which doesn't bother me, as I'm not one for showing my mid-riff off anyway. All though, when all this is done and dusted, I am seriously getting a tattoo on my back where my kidney was that says, "Left kidney was 'ere!!"
Glad all went well BG xxx Pops
ReplyDeleteSo well written nay dog. Daunting stuff but you are a tough one xx
ReplyDeleteThanks Liz xx
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